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Is Public Health Ready for Genetics? An Unanswered Question
Arch Pediatr Adolesc Med. 2001;155:1175-1176.
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| Since this article does not have an abstract, we have provided the first 150 words of the full text and any section headings. |
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The article by Farrell et al1 in the
February 2001 issue of the ARCHIVES and the accompanying editorial by Holtzman2 seem to be a premature indictment of state newborn
screening follow-up coordinators. If indeed 19 coordinators were counseling
parents against future reproduction when positive cases were identified, it
would be a source of concern. However, the methodology of the study on which
this conclusion is based seems to be flawed. The persons who responded to
the survey may not have done any counseling in the program. The mailing list
used for this study was one used for data reporting from the statesnot
a list of the people doing the counseling. The instructions to "fill out this
packet if your state routinely provides counseling services to families of
newborns with any positive screen," does not distinguish between routine counseling
by state staff and referral to the private sector. The authors admit . . . [Full Text of this Article]
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